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Clinical Trial Data Exposed in Academic Database Breaches

Original: Clinical trial data including genetic and medical history information has been exposed in academic research database bre

Breaches of academic research databases have exposed clinical trial data, including genetic and medical history information, affecting thousands of study participants. Privacy advocates are urging those affected to exercise their HIPAA rights by requesting their medical records and a list of everyone those records were shared with, and to correct any errors. The incident has renewed concerns about how research institutions safeguard sensitive participant data.

Why now: Concerns over genetic privacy and data security in academic research are driving discussion after news of the breaches.

academic research databasesclinical trial participants

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Evidence

• Clinical trial data including genetic and medical history information has been exposed in academic research database breaches affecting thousands of participants. So what: under HIPAA you can get your medical records and a list of who they went to. Request both, and correct… · indigoprivacy · 3

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